Para mais informação sobre doenças raras

“Websites” para saber mais sobre doenças raras:

Orphanet

ERN-ITHACA

EURORDIS

Unique

Associações de doentes com doenças raras em Portugal:

RD-Portugal

SERaro – Associação das Síndromes Excecionalmente Raras de Portugal

Fedra - Federação de Associações de Doenças Raras

Podcasts:

Podcast Vidas - um projeto da Sanofi dedicado a dar voz às pessoas que vivem com doença, este podcast destaca a importância de reforçar a voz dos doentes e ampliar o seu impacto para que, juntos, possamos transformar ainda mais vidas.

Catarina Costa Duarte, uma história sobre doenças raras

André Correia, uma história sobre doenças raras

Daniel de Vicente, uma história sobre ASMD

Isabela Cardoso, uma história de MPS

Tenho Cancro. E depois?

Privacy Overview

This website uses cookies to improve your experience while you navigate through the website. Out of these, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may affect your browsing experience.

Necessary

Sempre activado

Necessary cookies are absolutely essential for the website to function properly. These cookies ensure basic functionalities and security features of the website, anonymously.

Cookie	Duração	Descrição
cookielawinfo-checkbox-analytics	11 months	This cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Analytics".
cookielawinfo-checkbox-functional	11 months	The cookie is set by GDPR cookie consent to record the user consent for the cookies in the category "Functional".
cookielawinfo-checkbox-necessary	11 months	This cookie is set by GDPR Cookie Consent plugin. The cookies is used to store the user consent for the cookies in the category "Necessary".
cookielawinfo-checkbox-others	11 months	This cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Other.
cookielawinfo-checkbox-performance	11 months	This cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Performance".
viewed_cookie_policy	11 months	The cookie is set by the GDPR Cookie Consent plugin and is used to store whether or not user has consented to the use of cookies. It does not store any personal data.